SEER cancer registries must meet or exceed 95% successful follow-up. The follow-up rate is calculated on all eligible patients, both living and dead. The successful follow-up rate for eligible living patients is set by the CoC at 80 percent.
How often is follow-up performed for each patient in a cancer registry?
They are not a complete requirements list from which a new software package can be developed. 01 Patients must be followed up annually, which requires registries to conduct active follow- up every month.
What follow-up rate does the CoC require accredited cancer programs to meet for all eligible analytic patients from the cancer registry reference date?
CoC Standard 5.4 states, “a 90 percent follow-up rate is maintained for all eligible analytic cases diagnosed within the last five years or from the cancer registry reference date, whichever is shorter”.
When are patients considered lost to follow-up in a registry?
Lost to follow-up refers to patients diagnosed with cancer, but the registry has not obtained vital status information for one year or longer. Patients lost to follow-up can bias results of survival and other studies.
What is follow-up in cancer registry?
Follow-up information provides the documentation of residual disease or its spread, recurrences, or additional malignancies. Subsequent treatment is included in the cancer registry database although it should be noted the data is based on information in the medical record or available from external contacts.
What is the most common method of obtaining patient follow up?
Surveys are probably the most common method used for gathering information about populations. The subjects of a survey can be members of the general public, patients, health-care providers, or organizations.
Which of the following cases are required by the CoC?
Requirements of CoC / Governing Agencies
- Nonanalytic cases.
- Carcinoma in-situ of the cervix.
- Benign and borderline histologies.
- In-situ and localized basal and squamous cell carcinomas of the skin.
- Foreign residents.
- Patients whose age exceeds 100 years.
What percentage of cancer conference cases must be presented prospectively?
Minimum of 15 percent of the annual analytic case load must be presented and 80 percent of these case presentations must be prospective presentations. Conference activity can be reported in any type of format as long as all required elements are included.
What is the primary goal of a hospital based cancer registry?
The primary goal of the single hospital (institution) registry is to improve patient care by medical audit-type evaluation of outcomes.
What is follow up rate?
We propose a new definition for the follow-up rate, the Person-Time Follow-up Rate (PTFR), which is the observed person-time divided by total person-time assuming no dropouts. The PTFR cannot be calculated directly since the event times for dropouts are not observed.
What counts as loss to follow up?
In clinical medicine and research, loss to follow up refers to a person who has not returned for continued care or evaluation (e.g., because of death, disability, relocation, or drop-out).
What is acceptable loss to follow up?
A good rule of thumb is that <5% loss leads to little bias, while >20% poses serious threats to validity. However, even less than 20% loss to follow-up can be a problem. Considering a worst-case scenario can help determine whether loss to follow-up poses a potential threat to validity.
Do population registries include follow up information on patients?
Population-based registries initiate follow-up according to the rules and requlations at their institutions. Some registries send monthly letters to physicians when patients have not been updated for 12 months. Others send letters to patients or other contact sources.